By Adam Brazeau
CORNWALL, Ontario - Heads up! On Saturday, August 23, a rare disease impacting a local girl is going to get served.
© Submitted photo
Angelle and Jean Bourdon sit with their daughter Melanie at Lamoureux Park.
A volleyball fundraiser being hosted at Mocktails Patio in Cornwall will help families dealing with Morquio A Syndrome access treatments.
"Everyone is welcome, whether you play sports or not," said Angelle Bourdon, event organizer.
Her daughter Melanie, 11, was diagnosed with the disease at the age of two.
Bourdon explained Morquio patients don't have enough enzymes to break down complex sugars, which causes their bodies and organs to malfunction.
Individuals affected by the syndrome undergo as many medical procedures in one year than most people will in a lifetime.
"It is not surprising that some of our closest acquaintances are doctors, nurses and therapists," said Bourdon.
Melanie and her cousin Aiden Racine, 3, are amongst only a dozen Ontarians living with the disease.
"Come out and learn more about Morquio A Syndrome and benefit from 60 minutes of physical activity," said Bourdon.
Teams can register by e-mailing email@example.com for a cost of $20 per person or $200 per team.
The event kicks off at 8:00 a.m.
For more information, search for the Facebook page: Morquio Family Tree.